The Ichthyosis Support Group (ISG) is a small user-led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.
Ichthyosis is a rare genetic condition which predominantly affects the skin. It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many. It is a lifelong condition, usually presenting at birth and may be fatal.
The ISG vision: “The ISG is committed to the ongoing provision of an information network and support structure for sufferers and families affected by ichthyosis. Associated with that we need to create a greater awareness and understanding within the medical profession, and lobby for greater research into this distressing condition.”